When Margaret was first diagnosed with Hidradenitis suppurativa (HS), she recalls feeling isolated and ashamed. โWhen I was diagnosed with Hidradenitis suppurativa, I felt alone, ashamed. Iโve got constant boils*,โ she explains. The condition, which causes painful, recurring lesions, took a toll on both her physical and emotional wellbeing.
For Margaret, everyday life became a struggle. โWhen youโre going through this day in, day out, itโs traumatic and you need the help. With HidraWear, it was just life-changing. It was something that I can put under my armpits and I donโt need to put anything sticky on it. Amazing.โ
The challenges of living with HS extended beyond pain. Margaret describes moments of stigma and heartbreak: โThe first time I ever had a boil and it burst, the person I was really close to said โill.โ It broke my heart. Honestly, it broke my heart because I was like, oh, I canโt even come to you. So who can I go to?โ
Before discovering HidraWear, she relied on traditional gauzes, which often irritated her skin. โWith the sticky side, sometimes I used to see raw red skin just because of how much I used to take off, put it back on. Till I think second year of uniโthatโs when I saw HidraWear and I started using it for myself.โ
The change was immediate. โI took it off and I was like, I donโt feel pain, I donโt feel ashamed. Iโm just taking off the garment and just putting it back on. Itโs just easy, simple, you can do it anywhere. So I feel so much better.โ
Today, Margaret says her quality of life has transformed. โSince using HidraWear, my quality of life has been 100% better.โ
For more information about how to get HidraWear in England, Scotland or Wales, please see here
(*๐๐ญ๐ฆ๐ข๐ด๐ฆ ๐ฏ๐ฐ๐ต๐ฆ: ๐๐ฉ๐ฆ ๐ธ๐ฐ๐ณ๐ฅ ‘๐ฃ๐ฐ๐ช๐ญ๐ด’ ๐ช๐ด ๐ค๐ฐ๐ฎ๐ฎ๐ฐ๐ฏ๐ญ๐บ ๐ถ๐ด๐ฆ๐ฅ ๐ต๐ฐ ๐ฅ๐ฆ๐ด๐ค๐ณ๐ช๐ฃ๐ฆ ๐ญ๐ถ๐ฎ๐ฑ๐ด ๐ค๐ข๐ถ๐ด๐ฆ๐ฅ ๐ฃ๐บ ๐ฉ๐ช๐ฅ๐ณ๐ข๐ฅ๐ฆ๐ฏ๐ช๐ต๐ช๐ด ๐ด๐ถ๐ฑ๐ฑ๐ถ๐ณ๐ข๐ต๐ช๐ท๐ข. ๐๐ฉ๐ฐ๐ถ๐จ๐ฉ ๐ต๐ฉ๐ช๐ด ๐ช๐ด ๐ค๐ฐ๐ฎ๐ฎ๐ฐ๐ฏ, ๐ต๐ฉ๐ฆ ๐ญ๐ถ๐ฎ๐ฑ๐ด ๐ข๐ฏ๐ฅ ๐ฃ๐ถ๐ฎp๐ด ๐ข๐ณ๐ฆ ๐ฏ๐ฐ๐ต ๐ฃ๐ฐ๐ช๐ญ๐ด. ๐๐ฉ๐ข๐ฏ๐ฌ ๐บ๐ฐ๐ถ)
Alison Schofield: A Clinical Perspective
Alison Schofield, a Tissue Viability Nurse Specialist in the UK, explains the medical and practical challenges of HS.
โHidradenitis suppurativa is an inflammatory condition which creates wounds and lesions that tend to leak and can be very painful,โ she says.
Globally, HS is thought to affect about 1% of the population. Alison notes that the scale of the condition is often underestimated: โI think people underestimate the amount of leakage and exudate that lesions of HS can produce. Other wound types that we know have a high volume of exudate can be venous leg ulcers or cavity pressure ulcers. And HS certainly, in terms of leakage, would be equivalent – if not more so – than this.โ
HidraWear, Alison explains, is designed to address these challenges. โHidraWear is a dressing and dressing retention system, so it helps in the management of people with HS for their wounds. The dressings have a unique secure lock technology that enables them to stay in place in these difficult-to-manage areas. They are also very absorbent.โ
Beyond wound management, Alison emphasises empowerment: โIn the use of HidraWear, we aim to teach patients to empower them to have supported self-care in applying the retention base layer and the dressings into place in the areas where they are affected with HS lesions.โ
The clinical impact has been significant. โIn studies, 100% of patients said that the secure lock technology dressings improved their quality of life, and 93% reported a direct reduction in pain experienced through dressing changes.โ
For Alison, the benefits extend beyond the individual. โHidraWear is the most suitable thing that we could provide and supply for patients – for a patientโs quality of life and also for sustainability throughout the NHS.โ
Take a look at Prescriber Information For the UK